Ash Lal, MD is conducting a small pilot study examining the potential benefits of a nutritional supplement called Juvenon. Juvenon is a combination of L-carnitine and Alpha Lipoic Acid in one pill. People with thalassemia and sickle cell disease often have a breakdown of red blood cells. This process releases a damaging substance called "free radicals". A build up of free radicals can lead to health problems. This study is looking at the effect of Juvenon on free radicals and how it might prevent some health problems.
Who can participate?
What does the study involve?
- Patients with thalassemia that are NOT getting regular blood transfusions (E/Beta thalassemia, Hgb H disease)
- Anyone over 12 years old that can swallow pills
What are the benefits to participating in this study?
The study last for 6 weeks
- There are a total of 3 visits to the Clinical Research Center. You must be fasting, so morning visits are best.
- Each visit will last about 30 minutes. We will ask some basic health questions during each study visit and draw blood.
For more information, please contact Nancy Sweeters, RN, PNP at Children's Hospital & Research Center at Oakland, 510-428-3885, ext. 4151 or ask your clinical care provider.
- You will help doctors in thalassemia to see if a nutritional supplement can be helpful to patients in the future and you will be reimbursed for your time and travel.
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