Centers for Disease Control (CDC) Study

This is a national study that was set up by the Centers for Disease Control (CDC) to monitor the safety of the nation’s blood supply. The CDC is collecting blood samples from people with thalassemia to investigate the diseases that people can potentially get from blood.

This study is enrolling patients of all ages and requires a once-yearly blood sample (about 2 teaspoons) and a questionnaire about your (or your child’s) health. The blood sample will be tested to see if you (or your child) have been exposed to Hepatitis A, B, C, or HIV. You can get the results of these tests from your health-care provider. The information gained from this study will be used to help thalassemia specialty centers improve patient care. A competitive renewal for the CDC grant was submitted in May 2007 by CHRCO. If funding continues then patient enrollment will continue for another five years.

For more information, please contact Nancy Sweeters, RN, PNP at Children's Hospital & Research Center at Oakland, 510-428-3885, ext. 4151 or ask your clinical care provider.

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